So today is fun Friday at the Jordan house. Baili and Abi spend the day with us every week. Baili has school so not a lot of time to enjoy her but today Abi as usual was very entertaining. Abi started her day off bouncing in telling her daddy goodbye flinging of her coat and asking "Can I have a snack"...She struts to the cabinet, pulls over her 'epstool and proceeds to get the cookies. Now cookies at 730 am is only a possibility at Gram's house. So she squeals with delight to find 2 chocalate chip cookies left "just for me"she says. She then thinks maybe she needs something a little more nutritous and eats some peaches and then topped it off with a fruit roll up. She watched a little TV, swindled my kindle and downloaded this time not games but .99cent coins for her games she previously downloaded.....if it was for the casino one I hope she won. By 1030 she is in the kitchen again wanting some spaghettios so of course I fixed them along with a second cup of chocolate milk and a Capri Sun. She returns back to her bedroom bring out with some baby toys for Kolten and Kenzi. Then a slip and slide wanting to play outside with. We talked about how "its gonna be warm outside" didn't mean we could use the slip and slide yet. Next she comes out with blood on her forehead. I ask what did you do to your head....she says nothing...then she looks down and noticed her thumb bleeding and starts crying "I'M BLEEDING OH GRANDMA WILL ALL OF MY BLOOD COME OUT" reassuring her we put a bandaid on it as she noticed a finger bleeding GRANDMA I NEED BLOOD IN MY BODY!!!! So two bandaids later and a lot of convincing she really was going to live she has calmed down...to find out she found a planter that had broken in the bottom of her closet with a shell in it that she dug out to see if there was a crab in the shell that was in it! She is a mess!!!! I am pretty sure she would have passed out or went into shop had she really had a cut that ran or dripped blood. Next on the discussion board was what is for supper, I answered Italian beef and she proceeded to tell me that she wanted meatloaf....however her fingers could not probably take holding a fork for meatloaf :( She watched some Scooby Doo...colored a picture for her hamster Buddy's cage (Buddy went to hamster heaven last week), gave me a wish list of things she wants, a new horse that walks, fur real puppies, a flashlight animal *remember her birthday was just last week* then we decided a nap was in store so she could play outside when Baili gets home. Well she chose my bed instead of hers and when I went to check on her yes she was back in a box with a pillow....*my cousin Becky witnessed it* I convinced her to go to my bed and she is tucked in nicely sleeping....nope just heard her wake up!
These are times we will never get back! So all you parents and grandmas take time even though you think you don't have it and enjoy them! Even stop an journal it here and there! These are BLESSINGS FROM GOD!
from the 1st time she did this The Comfy bed :)
Wednesday, March 13, 2013
Each Day is a Blessing: ACCEPT THE THINGS YOU CANNOT CHANGE!: Well with the beginning of the year, most of us made new years resolutions. One of my wonderful friends talked me into making goals instead...
Tuesday, March 12, 2013
5 sets of tiny hands is what you see but never judge a book by its cover. Here is an inside look of these special lives!
One has stage III kidney failure. Two more have kidney impairment.
All five have brain aneurysms.
One had 3 brain surgeries in one month for moyamoya (a rare vascular disorder) and a ruptured brain aneurysm.
Three have had surgeries and interventions for aneurysms.
Two of them had aneurysms coiled just a few months ago.
Four of them are on blood pressure medications.
One of them is getting dental implants.
Three of them have dentures.
Two of them have significant hearing loss.
One of them has a tracheostomy.
All of them are under 39 inches tall.
The oldest is 23 years old.
Four of them have significant orthopedic impairments, scoliosis, hip and joint disorders.
BUT THIS DOESN'T DEFINE THEM! THEY CHOOSE TO LIVE LIFE TO ITS FULLEST!
One is a gymnast, a college student nearing graduation, a purple (working on brown) belt in karate, a basketball coach, a hunter, a role model and idol of his nieces and cousins, holds the shortest sibling record for Guinness World Records and has had his own docuseries Big Tiny.
One received a two year scholarship for cheerleading in college, is a fashion designer looking to start a new boutique, has the respect of all her nieces and cousins, organizes and cleans better than anyone in the house, has a little dog that she loves and loves her dearly, has reigned as the shortest living woman and is currently the shortest siblings for Guinness World Records and had her own docuseries Big Tiny.
One of them loves to dance and sing, has performed around the world in plays, loves her dogs and birds, inspires her nieces and nephews, and is an awesome artist!
One of them is still in school, loves hanging out with her sisters and brothers, works hard to give back for Potentials Foundation and charity with her parents, and never meets a stranger!
One of them is the most social butterfly anywhere, he loves girls most favorite is I Carly, he loves showing off his muscles and dance moves.
All of them have MOPD II dwarfism. All of them are not just friends but family to each other....it may not be by blood but by souls!